the meaning and purpose of the National Uildm Day

2017 is a year particularly rich in events, which the Uildm (Italian Union Fighting Muscular Dystrophy) has decided to take part. The spring is unmissable with the National Day of Uildm, a time of year when the Association leaves its premises to meet citizens in the streets, let them know what neuromuscular diseases are and explain how intense is the commitment to counteract them and ensure the best quality of life possible for people with disabilities.

Every year we try to deepen an aspect in particular of the everyday life of people with dystrophy and other neuromuscular diseases; this time we chose the game, a right to be guaranteed to all children, obviously including those with motor disabilities.

Each Section of Uildm is called to do its part for the success of the event (on the website of the national Uildm the list, constantly updated, of the offices involved). At Uildm Lazio Onlus we meet Annalisa Del Picchia, Head of Fundraising, with whom we take stock of the initiative.

Annalisa, can you describe the meaning and purpose of the National Uildm Day?

“The thirteenth edition of the National Uildm Day, will be held under the High Patronage of the President of the Republic, from 3 to 16 April 2017. It is a fundraising and awareness raising event, which will involve all the Uildm d’Italia Sections and will be dedicated to the project ‘Giocando Si Impara’, for the creation of inclusive playgrounds in local communities “.

Each Section contributes in its own way for the success of the Day. What does Uildm Lazio do?

“Our Section, like every year, organizes several collection stations in Rome and Lazio to distribute the gadget of the National Day, or the chocolate bar of milk or dark, and give information on the activities of our Association and on genetic diseases. Furthermore, we will be present in some companies and sports centers, which will renew their support every year. To help us in the distribution of gadgets there are the invaluable volunteers, who with their commitment and dedicating their time allow us to be present in the area with numerous posts “.

This year’s theme, the game, is only apparently frivolous. Why, instead, does Uildm undertake to guarantee it to children with disabilities?

“Uildm has been working since 1967 to guarantee rights and integration for people with disabilities. From an early age between school desks, but especially in the game, children build relationships, confront each other and make friends. Equipping green areas with rides suitable for children with motor disabilities means first of all responding to the need to relate and be together. To date, in Italy only 5% of playgrounds have a carousel accessible to children with disabilities, a very small number, which must absolutely grow. The project “Giocando Si Impara” aims to purchase, thanks to the collection and donations of this event, ten rides equipped to be inserted in as many playgrounds by 2017 and raise awareness among municipalities to adapt the play areas to the presence of people with disability, eliminating architectural barriers that often prevent access. Children have the right to play together, in the same place and within the limits of the possible with the same structures “.

How can we contribute to this cause?

“From April 3 to 16, whoever wants, can come and visit us in the squares of Rome, whose list you can find on the website or on our Facebook page Uildm Lazio, and receive our tablet of excellent milk chocolate or fondant, with a minimum contribution of 6 euros, or choose the packaging that sees together the chocolate bar and the historic butterfly-shaped plush keyring with a contribution of 10 euros. Who wants to dedicate a day to our cause can decide to organize a collection point in their own town or in their company and become ‘volunteer for a day’. Together we can do a lot, thanks to the help of hundreds of volunteers and as many donors, over the years we have achieved important milestones and raised funds to improve the quality of life of people with disabilities “.

Article by Manuel Tartaglia